Path: senator-bedfellow.mit.edu!faqserv
From: cfs-news@cais.cais.com (Roger Burns)
Newsgroups: alt.med.cfs,alt.answers,news.answers
Subject: FAQ: CFS Resources
Supersedes: <medicine/chronic-fatigue-syndrome/cfs-resources_885215922@rtfm.mit.edu>
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Date: 19 Feb 1998 11:10:35 GMT
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Summary: This posting describes on-line and in-print information resources 
          regarding chronic fatigue syndrome (CFS).
X-Last-Updated: 1997/03/20
Originator: faqserv@penguin-lust.MIT.EDU
Xref: senator-bedfellow.mit.edu alt.med.cfs:74493 alt.answers:32251 news.answers:123705

Archive-name: medicine/chronic-fatigue-syndrome/cfs-resources
Posting-Frequency: monthly
Last-updated: 1993/9/27

                      CHRONIC FATIGUE SYNDROME
                     Resource file for patients
           CFS-RES.TXT latest version: September 27, 1993

Copyright (c) 1993 by Roger Burns.  Permission is granted to
excerpt this document if the source, and the author (Roger Burns),
are cited.  Permission is also granted to reproduce the entirety of
this document unaltered.  Note that Fido and Fidonet are registered
marks of Tom Jennings and Fido Software.  The listing of public unix
nodes from Bux Technical Services, Inc. shown in Section 7 below is
copyrighted by that company, as indicated.


                             CONTENTS

1.    CFS -- Information and Networking

2.    What is Chronic Fatigue Syndrome?

3.    Support Groups

4.    Periodicals, Books, Medical Articles

5.    Sources of Electronic Information
       A: Discussions / Support
       B: BBSs
       C: Network services
       D: Files on Internet
       E: Back issues of CFS-NEWS

6.    BBSs which carry Fidonet's CFS Conference

7.    How to Get Access to the Networks
       A. Internet and Usenet
       B. Commercial Networks
       C. Fidonet


This file has been created and is maintained by Roger Burns, a CFS
patient.  The author welcomes suggestions for improving this resource
file, and can be contacted in the following ways:  (postal) Roger
Burns, 2800 Quebec St. NW #1242, Washington, DC 20008, USA;
(telephone) 1-202-966-8738; (Internet) CFS-NEWS@MAELSTROM.STJOHNS.EDU or
CFS-NEWS@NIHLIST.BITNET; (FidoNet) Roger.Burns at 1:109/432; or post
a message on the Fidonet CFS conference.

The latest version of this file is always available on the Internet;
send the command GET CFS-RES TXT as an e-mail message to the address
listserv@MAELSTROM.STJOHNS.EDU .  FTP access is available at nodename
list.nih.gov (128.231.64.10), directory CFS-NEWS, filename
CFS-RES.TXT.  The file has also been uploaded as filename CFS-RES.TXT
to the following:
   Project ENABLE BBS, tel. 1-304-759-0727, file area 22;
   GEnie network, Page 970, category 18, file area 11;
   CompuServe forum GOODHEALTH, Library 17, (filename CFSRES.TXT).


===================================================================

Section 1:  CFS -- INFORMATION AND NETWORKING

There is not enough information in this file to serve as a
comprehensive resource for CFS patients.  For referrals to doctors
and other helpful information, CFS patients are urged to contact
one of the national support groups listed under Section 3 below.
The national groups can also refer you to local support groups, or
advise you on how to start a local support group.  Be sure to
subscribe to one of the CFS newsletters such as the CFIDS Chronicle,
the MEssenger, or one of the others published by the national groups
listed in Section 3 below.

ELECTRONIC NEWSLETTER.  Current medical research updates can be
obtained by subscribing to CFS-NEWS, the Chronic Fatigue Syndrome
Electronic Newsletter.  The newsletter is posted to the CFS "echo"
(or conference) on Fidonet (see the next item, and Section 6) and is
also available as USENET newsgroup bit.listserv.cfs.newsletter .  It
is on file on the Project ENABLE BBS, tel. 1-304-759-0727, file area
22.  For an Internet subscription, follow the procedure in Section
5-C below (under Internet) or send an e-mail inquiry to the address
CFS-NEWS@MAELSTROM.STJOHNS.EDU.  Back issues are available at the BBS
mentioned above; also on the Tucson CFS BBS and on Compuserve and
GEnie (see Section 5-E below).

FIDONET CONFERENCE.  It can be very helpful to join the CFS
Conference and exchange information with the participants on the
worldwide Fidonet network of personal computers.  Access to Fidonet
is usually free of charge.  Currently, the conference is carried by
129 BBSs in the USA, Canada, Australia, Britain and the Netherlands.
See Section 6.

CFS DISCUSSIONS ON NETWORKS.  There are active CFS discussions, and
some files areas, on the CompuServe, Prodigy, GEnie and Internet
computer networks.  If you already have an account on one of these
networks and wish to find where the CFS discussions & information
are, see Section 5-C below.  If you wish to find out how to get
access to any of these networks, read Section 7 below.

CFS NEWSWIRE.  Support groups exchange news articles and other
information worthy of re-publication on the CFS Newswire, available
on Internet and on those services which connect to Internet
(CompuServe, GEnie, Free-Net and others, and soon Prodigy).  For
further information on how to access Internet, see Section 7-A below.
Once on Internet, send the command SUB CFS-WIRE <your> <name> to the
address listserv@MAELSTROM.STJOHNS.EDU .  Newsgroup access is being
arranged and the Newswire will soon appear as alt.med.cfs.wire.  For
further information, contact the CFS/ME Computer Networking Project
described below.

ELECTRONIC MAGAZINE.  "Catharsis" is a CFS electronic newsmagazine
which focuses on personal health, intellect and creativity.  The
magazine is posted to the CFS "echo" (or conference) on Fidonet (see
the next item, and Section 6).  For an Internet subscription, follow
the procedure in Section 5-C below (under Internet) or send an e-mail
inquiry to the editor (see below).  The magazine is available as
newsgroup alt.med.cfs.zine.  Back issues are available on the
MEDBASE/CFS Tucson BBS at 1-602-790-7420 and on Compuserve and GEnie
(see Section 5-E below).  For inquiries contact editor Molly
Holzschlag at the Electronic Information Exchange, PO Box 42225,
Tucson, AZ 85733-2225, USA  or at Fidonet Molly.Holzschlag@1:300/23
or at Internet CATHAR-M@MAELSTROM.STJOHNS.EDU.

CFS INFORMATION AVAILABLE ON ELECTRONIC FILES.  Many helpful
information files on CFS are available on certain BBSs accessible to
anyone with a personal computer and a modem, and also on various
computer networks.  See Section 5 below.

NETWORKING PROJECT.  The volunteer members of the CFS/ME Computer
Networking Project assist individuals and support groups in using
computer networks.  They have written articles that may be
re-published without charge which explain what CFS resources are
available and where and how they can be found, and they have created
a CFS Newswire service for news exchange between CFS support
organizations (see above).  For detailed information about Project
services, send postal mail to The CFS/ME Computer Networking Project,
PO Box 2397, Washington DC 20013 USA (when corresponding please
include a stamped, self addressed envelope, or outside of the USA
include an International Reply Coupon obtainable at your post office)
or send Internet e-mail to cfs-me@MAELSTROM.STJOHNS.EDU or Fidonet mail
to CFS-ME at 1:109/432.



Section 2:  WHAT IS CHRONIC FATIGUE SYNDROME?

Chronic Fatigue Syndrome (CFS) is also known as Chronic Fatigue and
Immune Dysfunction Syndrome (CFIDS) and outside of the USA is
usually known as Myalgic Encephalomyelitis (ME).  The syndrome is
known primarily by debilitating fatigue accompanied by other
flu-like symptoms, which can vary from patient to patient, including
sore throat, low-grade fever, joint aches and an inability to
concentrate.  The symptoms often come and go in cycles.  Medical
research has associated CFS with low levels of the brain hormone
cortisol and with viral activity, and on-going research is attempting
to identify a specific virus or other physical agent as the clear
cause.

The treatments currently available have rather limited and
varying effectiveness.  The most common recommendations in dealing
with CFS are to get as much rest as possible and to avoid physical
and emotional stress.  A summary of medical treatments appears in
chapter 11 of _Running_On_Empty_ by Katrina Berne, Ph.D., and in part
2 of _Living_With_M.E._ by Charles Shepherd, M.D. (see Section 4
below).

CFS sufferers are advised to seek help from a licensed health care
practitioner who is familiar with the syndrome.  They are also
urged to join one of the various support groups (see next section)
which advise CFS sufferers, publish newsletters and promote medical
research of the syndrome.



Section 3:  SUPPORT GROUPS

NOTE:  Some local support groups are listed in files found on the
Project ENABLE BBS (see Section 5-B below) and on Internet (see
Section 5-D).

       === USA ===

 CFIDS Association
 P O Box 220398
 Charlotte, NC 28222-0398
 answering machine: 800-442-3437 (44-CFIDS) or 1-704-362-2343
 information line:  900-988-2343 (988-CFID)
   $2.00 1st minute, $1.00 each thereafter
 fax line:   1-704-365-9755
 membership: $25/yr, includes subscr. to "CFIDS Chronicle" magazine
 services: will provide list of local support contacts, also list of
physicians recommended by local patients; they raise funds for
medical research, lobby U.S. Congress to influence health policy;
the Chronicle magazine is excellent; IFMEA Medical Update (quarterly)
available at $3 per copy.

 National CFS Association
 3521 Broadway / Suite 222
 Kansas City, MO 64111
 telephone: 1-816-931-4777
 Available:
    Quarterly newsletter $15/yr.
    general information packet $1
    patient info. packet $5
    physician's packet $10
    how to be a phone contact $4
    how to form a support group $6
    CFS info. bibliography $3.50

 CFIDS Foundation
 965 Mission St., Suite 425
 San Francisco, CA 94103
 info line: 1-415-882-9986 from 1pm-3pm Pacific Time
 fax: 1-415-882-9758
 publication "CFIDS Treatment News" (about twice yearly); subscr. in
exchange for any donation (tax deductible).

       --- Fibromyalgia ---

 Fibromyalgia Network
 5700 Stockdale Hwy, Suite 100
 Bakersfield, CA 93309
 info line: 1-805-631-1950 from 10am-2pm Pacific Time
 publication: FM Newsletter (quarterly); $15/yr USA, $17/yr Canada
 referrals to local FM groups

 -- EI/MCS: environmental illness / multiple chemical sensitivities -

 Human Ecology Action League
 P.O. Box 49126
 Atlanta, GA 30359
 tel. 1-404-248-1898
 publishes The Human Ecologist (quarterly), resource and reading
lists, information on EI/MCS

 National Center for Environmental Health Strategies
 1100 Rural Avenue
 Voorhees, NJ 08043
 tel. 1-609-429-5358
 annual membership is $15/individual, $20/family, $25/prof.,business,
$10/ltd. income, seniors, youth;
 services: newsletter Delicate Balance; technical assistance;
referrals for medical, legal, ent'l. & public health specialists;
books, reports, info packets; info on workplace issues; advocacy;
Pesticide Exposure Project; help for local support groups

 American Acadmey of Environmental Medicine
 P.O. Box 16106
 Denver, CO 80216
 tel. 1-303-622-9755

 Chemical Injury Information Network
 P O Box 301
 White Sulphur Springs, MT 59645
 contact: Cynthia Wilson, tel. 1-406-547-2255
 support & advocacy; they publish the monthly "Our Toxic Times",
available for any donation (no dues or subscription fees)

 National Foundation of Chemical Hypersensitivities and Allergies
 PO Box 222
 Ophelia, VA 22530
 tel. 1-804-453-7538

       --- Lyme disease ---

 National Lyme Disease Foundation
 P.O. Box 462
 Tolland, CT 06084
 tel. 800-886-5963 or 1-203-871-2900
 monthly newsletter $30/yr; many information pamphlets, videos;
referrals to doctors

       === CANADA ===

 The Nightingale Research Foundation
 383 Danforth Avenue
 Ottawa, Ontario  K2A 0E1
 telephone:  1-613-728-9643
 fax: 1-613-729-0825
 membership: $35/yr. includes quarterly newsletter
 services: they support a network of local support groups;
publish a 750 pp. CFS medical textbook edited by Dr. Byron Hyde, MD

 M.E. Association
 246 Queen Street  Suite 400
 Ottawa, Ontario  K1P 5E4
 telephone: 1-613-563-1565
 fax: 1-613-567-0614
 membership: $35/yr. includes monthly newsletter "The MEssenger";
list of medical articles regarding CFS/ME provided on request.

 National ME/FM Action Network
 3836 Carling Ave., Hwy 17B
 Nepean, ON K2H 7V2
 membership $20.00/yr, soon to have newsletter

       === UK ===

 Myalgic Encephalomyelitis Association
 Box  8
 Stanford-le-Hope
 Essex SS17 8EX
 telephone: 44-0375-642466  advice line, 1-4pm: 44-0375-361013
 fax: 44-0375-360256
 membership: #12/yr dues includes subscr. to quarterly newsletter
"Perpectives"; subscr. to quarterly IFMEA Medical Update is #8/yr
 other services: the advice line shown above gives counseling on
welfare rights & other issues; refers patients to local support
groups; provides medical journal articles & other info to physicians
and others; makes speakers available to give talks; video library.

 Action for M.E.
 P.O Box 1302
 Wells, Somerset  BA5 2WE
 membership includes subscr. to Interaction journal 3 times/yr.
 dues: UK #12.50; Europe #17.50; overseas #27.50 air, #17.50 surface
 activities: works in partnership with over 200 local M.E. support
  groups, many of whom actively raise public awareness of the
  illness through media and local MPs etc..
 publications:
   - Interaction journal w/o membership is #5 per year (UK);
     available on tape #2 per issue, cheque payable to ME Tapes,
     send to Melanie Kelly, 29 Blandfield Road, London, SW12 8BQ
   - Therapy Information Pack, 9 factsheets on a comprehensive
     range of M.E. therapies (Members #2:50, Non-Members #3:50)
   - Supplementary Factsheets 35p each:
     Information for Doctors, to help your GP
     A Guide for the Non-sufferer, to educate friends,
        relatives and work colleagues
     Information for Employers
     Advice for Young Sufferers, i.e. under 25`s
 other services:
   - Therapy Information Helpline 0959-525341
   - Postal Library; Press Cuttings Library; Medical Library;
       General Lending Library
   - List of Recommended Consultants; member recommended
       consultants that have been found helpful in the past.
   - Free legal Advice
   - Pen Pals Service
   - Introductory video for sale or hire
   - Publicity posters and recruitment leaflets
   - retail discounts on Efamol Marine, probiotics, etc.

 Northern Ireland Region M.E. Association
 Bryson House
 28 Bedford Street
 Belfast BT7 1HP
 tel. 44-0232-439831

 Scotland M.E. Association
 11 Queens Crescent
 Glasgow G4 9AS
 tel. 44-041-332-1651  fax: 44-041-332-0175

       === AUSTRALIA ===

 ME/CFS Society of New South Wales
 P.O. Box 449
 Crows Nest, NSW 2065
 telephone: 61-2-439-6026  fax: 906-7892
 newsletter (quarterly): AUS$25 /yr.
     $12/yr for students, pensioners, those on benefit programs
     $30/yr for overseas subscribers (airmail)
  services: information; social worker; referrals to local support
  groups throughout NSW

 ME/CFS Society of Victoria
 23 Livingstone Close
 Burwood, Victoria 3125
 newsletter (quarterly)
 telephones:
   admin/social worker: 61-3-888-8991

 ME/CFS Society of South Australia
 P.O. Box 383
 GPO, Adelaide, South Australia 5001
 telephone -- counseling & information: 61-8-373-2110

 ME Syndrome Society of Queensland
 P.O. Box 12
 Oxenford, Queensland 4210
 tel. 61-75-73-2772

 CFS Society of Western Australia
 92 Powell Street
 Joondanna
 Perth
 Western Australia 6060
 tel. 61-09-483-6667

       === NEW ZEALAND ===

 A.N.Z.M.E. Society
 P.O. Box 35-429
 Browns Bay
 Auckland 10
 publication "Meeting Place" $35/yr. for overseas airmail subscr.

       === IRELAND ===

 Irish M.E. Trust
 18 Upper Fitzwilliam St.
 Dublin 2
 tel. 353-1761413

       === NETHERLANDS ===

 (Dutch M.E. Foundation)
 M.E. Stichting
 Office:  Robert Scottstraat 4
          1056 AX  Amsterdam
 Postal address:
          Postbus 57436
          1040 BH  Amsterdam
 telephone: none
 membership: any donation
 newsletter: "MEdium" (quarterly), 30 guilders/yr.
 other services: send a self-addressed & stamped envelope to receive
information brochure; IFMEA Medical Update is summarized in MEdium
newsletter, full text is available at cost of copying & postage --
contact the office to ask what the exact price is (different for each
issue)

       === BELGIUM ===

 AFZ M.E.
 Predikherenstraat 2
 B-3000
 Leuven

       === DENMARK ===

 Danish ME/CFS Association
 co/ A Midsem
 Maglehoj 86
 DK-3520 Farum

       === NORWAY ===

 Norges M.E. Forening
 Eikveien 96A
 1345 Osteras
 telephone & fax: 47-2-249879
 membership: 200 krona/yr includes subscr. to newsletter "ME Nyheter"
issued 3 or 4 times per year
 other services: offers subscr. to UK Interaction magazine, 45 krona
per year; provides IFMEA Medical Update (for now, no charge to
members); support group meetings in Oslo

       === GERMANY ===

 Selbsthilfegruppe CFS-Syndrom - Immundysfunktion
 c/o Birke Steinitz
 An St. Swidbert 52
 D-40489 Duesseldorf
 telephone: 49-211-404376

       === ITALY ===

 C.F.S. Associazione Italia
 Segreteria: Via Moimacco 20
 33100
 Udine

       === HONG KONG ===

 Hong Kong ME Information
 60B Conduit Road, 3rd floor

       === PAPUA, NEW GUINEA ===

 Papua, New Guinea Myalgic Encephalomyelitis Support
 Box 44
 Ukarumpa, Via Lac

       === REPUBLIC OF SOUTH AFRICA ===

 ME Awareness Group
 66 Third Street
 Lower Houghton, 2198

 M.E. Association of South Africa
 PO Box 461
 Hillcrest 3650



Section 4:  PERIODICALS, BOOKS, MEDICAL ARTICLES

                   === PERIODICALS ===

 > IFMEA Medical Update (quarterly) -- contact one of the following
national groups listed in Section 3 above: CFIDS Assoc. (USA), M.E.
Assoc. (UK), M.E. Stichting (Neths.), Norges M.E. Forening (Norway)
 >CFIDS Chronicle -- see Section 3 above, USA "CFIDS Association"
 >MEssenger (monthly) -- see Section 3 above, Canada "M.E.
Association"
 >Interaction (3/yr) -- see Section 3 above, ME Action Campaign (UK)
or Norges ME Forening (Norway)
 >Meeting Place -- see Section 3 above, New Zealand "ANZME"
 >CFIDS Treatment News (twice yearly) -- see Section 3 above, USA
"CFIDS Foundation"
 >FM Newsletter (quarterly) -- see Section 3 above, USA "Fibromyalgia
Network"
 >Heart of America Newsletter (quarterly) -- see Section 3 above,
USA "National CFS Association"
 >The Update (quarterly) -- from the Mass. CFIDS Assoc., 808 Main
St., Waltham, MA 02154, USA. $20/yr.
 >CFS DysPatch Newsletter (about 6 per year) -- from CFS Information
& Support Group of Charleston, Inc., 997 Johnnie Dodds Blvd. #811,
Mt. Pleasant, SC 29464.  Subscription:  USA $15/yr., Canada US$17,
Foreign $24, make check payable to CFS Inc.

                   === BOOKS ===

"Living With M.E.: the Chronic/Post-Viral Fatigue Syndrome", new
edition for 1992, by Dr. Charles Shepherd, MD.  380 pp. North
America: send $13.99 to Butterworth Canada Lt'd., 75 Clegg Road,
Markham, Ontario L6G 1A1, CANADA.  Canadian customers add 7% GST.
Add $4 if not pre-paid. Accept VISA & M/C.  Fax # 1-416-479-2826.
Britain: send #8.00 to Reed Consumer Books, Dept. SP, First Floor,
FREEPOST, Michelin House, 81 Fulham Road, London SW3 6YZ.  Accept
Access/American Express/Barleycard/ Diners Club/Visa. Australia: $12
plus $4 postage, send to ME/CFS Society Victoria Inc., 23 Livingstone
Close, Burwood, Victoria, 3125 Australia.

"Chronic Fatigue Syndrome: A Pamphlet for Physicians", publication #
92-484, by the staff of NIH; May 1992; 15 pages; free of charge.  For
copies, contact Office of Communications, N.I.A.I.D., Building 31
Room 7A32, 9000 Rockville Pike, Bethesda, MD 20892, tel. 1-202-496-
5717.  [Note: the text of this pamphlet is available as an electronic
file, on Internet as filename CFS NIH-DOC and on various BBSs as
CFS-NIH.DOC; see Section 5, subsections B and D, below.]

"Running On Empty: Chronic Fatigue Immune Dysfunction Syndrome"
by Katrina Berne, Ph.D.; 1992; 320 pages; softcover $13.95, hardcover
$21.95, add shipping cost: $2 USA, $3 Canada; make check payable to
Hunter House Inc., 2200 Central Ave., Alameda, CA 94501-4451, USA; or
use VISA or M/C; tel. 1-510-865-5282, fax 1-510-865-4295.

"The Clinical and Scientific Basis of Myalgic Encephalomyelitis /
Chronic Fatigue Syndrome" edited by Dr. Byron Hyde MD, 75 articles by
80 researchers; 1992; 750 pp.; $140.00 Canadian or US, which includes
postage and handling,  Canadian orders are not subject to GST; $85
for patients, or contact Foundation for commission policy; VISA,
MasterCard or American Express, include signature, card number and
expiration date; order via telephone 1-613-728-9643 or fax
1-613-729-0825.   Make checks or bank drafts payable to Nightingale
Research Foundation, 383 Danforth Avenue, Ottawa, Ontario K2A 0E1,
CANADA.

"Chronic Fatigue Syndromes: The Limbic Hypothesis" by Dr. Jay
Goldstein, M.D. 259 pages. 27 color plates.  Softbound $49.95 ISBN
1-56024-904-8; Hardbound $89.95 ISBN 1-56024-433-X.  Add shipping &
handling charges: USA, $2.75 by mail ($3.75 by UPS); Outside USA,
surface $4.50, air $6.00.  Checks and money orders should be in U.S.
funds.  New York State residents should identify their county and add
appropriate sales tax after shipping and handling.  In Canada, add 7%
before shipping for Canadian GST.  Accept VISA, M/C, AMEX: include
account #, expiration date, signature (for M/C also include bank #);
if paying from outside the USA be sure to allow for the current
exchange rate.  US libraries and institutions may be billed later;
send PO# and signature.  Orders may be placed by calling tel. (USA &
Canada) 1-800-342-9678 or (international) 1-607-722-5857 from 9am-5pm
EST.  Send mail orders to The Haworth Medical Press, 10 Alice Street,
Binghamton, NY 13904-1580, USA.

                   === MEDICAL ARTICLES ===

Klimas N; Salvato F; Morgan R; Fletcher M; "Immunologic abnormalities
in chronic fatigue syndrome". J of Clinical Microbiology 28:1403-1410
(June 90)  [Study showing that NK cells (a kind of immune cell)
malfunction in CFS patients; other abnormalities]

Buchwald D; Komaroff A; Cheney P; et al.; "A chronic illness
characterized by fatigue, neurologic and immunologic disorders and
HHV-6 infection". Ann Int Med 116:103-112 (Feb 1992)  [Study showing
many CFS patients have HHV-6 infections]

Demitrack M; Dale J; Straus S; et al.; "Evidence for Impaired
Activation of the Hypothalamic-Pituitary-Adrenal Axis in Patients
with Chronic Fatigue Syndrome". J of Clinical Endocrinology &
Metabolism 73:1224-34 (Dec 1991)  [shows chemical abnormalities in
the brains of CFS patients]

Straus S; Strober W; Dale J; Fritz S; Gould B; "Lymphocyte Phenotype
and Function in the Chronic Fatigue Syndrome". J of Clinical
Immunology 13:30-40  (Jan 93)  [Study showing T4 cell (a type of
immune cell) abnormalities in CFS patients]

Lusso P; Malnati M; Garzino-Demo; Crowley; Long; Gallo; "Infection of
natural killer cells by human herpesvirus 6". Nature 362:458-462
(April 1 1993)  [HHV-6 -- previously found in CFS patients -- now
shown to kill NK cells (a type of immune cell) -- a small but
important advance in research]



Section 5:  SOURCES OF ELECTRONIC INFORMATION:

              === A: DISCUSSIONS / SUPPORT ===

For a description of electronic discussions on Fidonet and other
computer networks, see Section 1 above.

              === B: BBSs ===

 PROJECT ENABLE BBS : 1-304-759-0727
 Cross Lanes, West Virginia USA  Sysop: Tom Freeman

 MEDBASE / TUCSON CFS BBS : 1-602-790-7420
 Tucson, Arizona USA  sysop: Molly Holzschlag

 USA CFIDS/CFS BBS : 1-207-623-8486
 Augusta, Maine USA         Sysop: John Kossowan

 WHOLENOTE BBS : 1-704-251-9863
 Asheville, North Carolina USA   Sysop: Will McGruffin
 > over 100 files of CFS information

 Lifeline BBS : 1-904-276-4724
 Jacksonville, Florida USA  Sysop: Gail Hitson

 Health Support BBS : 1-904-727-7794
 Jacksonville, Florida USA  Sysop: Linda Solomon

 MED-INFO BBS : 1-904-246-1481
 Jacksonville, Florida USA

 SOUTH OF THE RIVER : 1-913-642-7907
 Kansas City, Kansas USA

 NATIONAL CAPITAL FREENET : 1-613-780-3733
 Ottawa, Ontario CANADA (enter GO CFSEIR)

 WHOLEBIT COMPUTER NEWS : 1-613-521-3690
 Ottawa, Ontario CANADA     Sysop: Sandy Shaw

 BLACK BAG BBS : 1-302-994-3772
 Newport, Delaware USA       Sysop: Ed Delgrosso, M.D.

 WELLSPRING BBS : 1-714-856-7996
 Irvine, California USA     Sysop: Steve Clancy
 > a service of the Univ. of California/Irvine Biomedical Library

 SHAKING HANDS : 44-252-626233      Fleet, BRITAIN

 MEGAHERTZ (Midn-6am): 44-81-595-1921
 London, BRITAIN     Sysop: Lloyd Hopkins

 DUTCH HEALTH BBS : 31-55-337951    Apeldoorn, NETHERLANDS

 SPACIAL EXPANDER BBS : 61-2-6733559   Sydney, AUSTRALIA

                   === C: NETWORK SERVICES ===

This subsection covers "what CFS resources are on the networks, and
where to find them once you're on the network".  To find out how to
get on the various networks, see Sections 6 and 7 below.

FIDONET CFS CONFERENCE, also known as the Fidonet CFS "echo", is a
very active CFS discussion group.  It's available on BBSs world-wide
that usually charge no user fees.  (The conference is described
further in Section 1 above).  A list of BBSs that currently carry the
conference is in Section 6 below, and if none are nearby to you then
there is advice on how to get a local Fidonet BBS to carry the
conference, or "echo", in Section 7 below.

PRODIGY computer service has a very active CFS discussion group.
Prodigy is available in the USA only.  To get to the CFS section,
[JUMP] Medical Support and then choose the topic devoted to Chronic
Fatigue Syndrome.  Prodigy plans to add Internet e-mail in the autumn
of 1993.  For sign-up and cost information, see Section 7 below.

GENIE computer service has an active CFS discussion & files area.
Subscribers may go to page 970 and choose Category 18. Files are in area
#11. Internet e-mail is available; for beginner's help with *sending*
Internet mail, enter the command M 207. However, to regularly send and
read Internet mail, use the usual GEnie mail area at page 200. To send,
simply Add "@INET#" to the end of any Internet address in order to send
to that address; e.g. to send mail to the CFS-NEWS editor whose Internet
address is cfs-news@MAELSTROM.STJOHNS.EDU you should send your GE
Internet mail to cfs-news@MAELSTROM.STJOHNS.EDU@inet# . For sign-up and
cost information, see Section 7 below.

INTERNET has the CFS-L conference, the CFS-NEWS electronic
newsletter, the CFS Newswire service, the Catharsis Newsmagazine, and
information files available on 2 different Listservs (see the
following subsection).  There are also discussion groups on general
immune system dysfunction; fibromyalgia, holistic lifestyle,
vegetarianism, and other topics.

- To join CFS-L or CFS-NEWS, Internet users can send a subscription
command by e-mail in the form of SUB <listname> <your_first_name>
<your_last_name> to the automated administrator at
LISTSERV@MAELSTROM.STJOHNS.EDU ; e.g., send the command SUB CFS-NEWS
John Doze to that address. If there is any difficulty, send an inquiry
by e-mail to the moderator at address CFS-NEWS@MAELSTROM.STJOHNS.EDU .

- the CFS Newswire (listname CFS-WIRE) and Catharsis magazine
(listname CATHAR-M) are available at a different Listserv address.
To subscribe the, send the command SUB <listname> <your_first_name>
<your_last_name> to the address LISTSERV@MAELSTROM.STJOHNS.EDU .  If
there is any difficulty, send an inquiry to the Newswire operators at
CFS-WIRE-REQUEST@MAELSTROM.STJOHNS.EDU, or to the Catharsis editor at
address CATHAR-M@MAELSTROM.STJOHNS.EDU .

Internet also has the FIBROM-L and "immune" discussion groups.
FIBROM-L is a Listserv discussion group devoted to fibromyalgia
issues.  To join, type the command SUB FIBROM-L <your> <name>, where
your name replaces <your> <name>, and send it to
LISTSERV@UIUCVMD.BITNET or to LISTSERV@VMD.CSO.UIUC.EDU .  To join
"immune", send a request to the list-owner at address
immune-request@weber.ucsd.edu .  For information on getting access to
Internet, see Section 7 below.  For information about other
discussion groups, send the command GET CFS NET-HELP to the address
listserv@MAELSTROM.STJOHNS.EDU .

COMPUSERVE computer service has begun a CFS discussion in its Health
& Fitness Forum.  Enter GO GOODHEALTH, find message section 17
(Self-Help/Support) and see messages with "CFS" in the subject
header.  Be sure that messages which you post include "CFS" in the
subject header.   There are information files in GOODHEALTH's Library
17 as well; using the Library section's Browse command, do a keyword
search on "CFS".  Compuserve offers Internet e-mail access: enter GO
MAIL and when entering an address, insert >INTERNET: before the
Internet address.  For sign-up and cost information, see Section 7
below.

USENET "newsgroups" are available on the UUCP network and are carried
by a number of BBSs (see NIXPUB and PDIAL info in Section 7 below).
Both CFS-NEWS and the CFS-L discussion group are seeking approval to
set up gateways to sci.med newsgroups (perhaps by late 1993).  For
now, CFS-NEWS is gatewayed to bit.listserv.cfs.newsletter and the
CFS-L discussion group is gatewayed to alt.med.cfs.

FREE-NETS are non-profit systems in various cities (all inter-
connected) that offer free access to Internet e-mail and other
services (see Section 7 below).  From any of the Free-Nets you can
access the CFS section on the National Capital Free-Net in Ottawa (or
telnet to 134.117.1.25).  Once in that system, enter the command GO
CFSEIR to get to that section.

MCI-MAIL offers Internet electronic mail and all in-coming messages
are free, thus this service is excellent for receiving CFS-NEWS,
CATHAR-M and monitoring the CFS-L discussion group.  However,
out-going messages are expensive.  They also offer faxes and other
communication services. For sign-up and cost information, see Section
7 below.

                  === D: FILES ON INTERNET ===

A general description of, and means of access to, the Internet
appears in Section 7 below.  Information files about CFS are
available for retrieval by e-mail from the Internet.  The Albany
Listserv is at address LISTSERV@ALBNYDH2.BITNET or alternatively
LISTSERV%ALBNYDH2.BITNET@ALBANY.EDU.  To get a list of available
files, send the message GET CFS-D FILELIST to the above address.  To
get any specific file, send the message GET <filename1> <filename2>
(each file has a two-part name).  For example, to retrieve the latest
version of THIS file (which is named CFS-RES TXT), send the message
GET CFS-RES TXT .  To automatically receive future notices about
updates to the CFS filelist, create the message SUB CFS-D <your>
<name>  where your name replaces <your> <name>, and send it to the
LISTSERV address shown above.

A new base of CFS information files is being developed at the SJUVM
Listserv.  To get a list of available files, send the message GET
CFS-FILE FILELIST to the address LISTSERV@MAELSTROM.STJOHNS.EDU or to
LISTSERV@SJUVM.BITNET .  To get any specific file, send the message
GET <filename1> <filename2> (each file has a two-part name) to the
Listserv address above.

                  === E: BACK ISSUES OF CFS-NEWS ===

CFS-NEWS back issues are stored on several systems.

  - via Internet e-mail, send the command GET CFS-NEWS ### (where ###
represents a particular issue number, e.g., for issue #21, ### would
be 021) as e-mail to LISTSERV%ALBNYDH2.BITNET@ALBANY.EDU

  - via Internet anonymous ftp, connect to list.nih.gov
(128.231.64.10), directory CFS-NEWS, monthly logs in the form of
filename cfs-news.logYYMM, where YYMM represents the year and month;
e.g. for 1992, August the filename would be cfs-news.log9208; to see
what is contained in each monthly log, get filename cfs-news.index;

  - on the Project ENABLE BBS in Cross Lanes, West Virginia USA at
tel. 1-304-759-0727 in file area 22;

  - on the Fidonet CFS echo or USENET newsgroup
bit.listserv.cfs.newsletter, check previous messages.

  - on Compuserve in the GOODHEALTH forum, section 17, filenames in
the form of CFSNEW.### (where ### represents a particular issue
number, e.g., for issue #21, ### would be 021) .  Also on GEnie on
page 970, Category 18, file area 11, filenames CFS-NEWS.###.  And on
the MEDBASE / Tucson CFS BBS at tel. 1-602-790-7420, in the
newsletter section.



Section 6:  BBSs WHICH CARRY FIDONET'S CFS CONFERENCE

Fidonet is a volunteer network of personal computer "bulletin board
systems" (BBSs) which can be accessed by anyone with a personal
computer and a modem.  The CFS Conference on Fidonet is sponsored by
the West Virginia Research and Training Center in Cross Lanes, West
Virginia USA.  The conference can be reached at any of the 128 BBSs
listed below (although additional BBSs are joining every week).  Each
day, participants exchange and discuss experiences about treatments
and other issues.  If none of these BBSs are particularly near to
you, see subsection 7(B) below about further access to Fidonet BBSs.
The following listing is compiled and maintained by Mr. Sandy Shaw.

                      CFS CONFERENCE BBS LIST
                        as of July 29, 1993

                            === USA ===

 MetaBoard                            Birmingham AL  1-205-254-3344
 Ken's BBS                            Montgomery AL  1-205-244-0296
 The Whole-Wheat Twinkie             Little Rock AR  1-501-227-9600
 The U.S.A. BBs                    N Little Rock AR  1-501-753-8575
 Golden Valley PonyRom                   Kingman AZ  1-602-757-0385
 Comm-Post                                Tucson AZ  1-602-571-9063
 Prologue                                 Tucson AZ  1-602-741-7851
 Clovis-Net                               Clovis CA  1-209-292-3530
 The Beemer Board                        Manteca CA  1-209-823-0854
 One World                           Los Angeles CA  1-310-372-0987
 Body Dharma Online                     Berkeley CA  1-510-836-4717
 WPGS                                   Adelanto CA  1-619-246-5166
 Mushin BBS                            San Diego CA  1-619-535-9580
 Shenk's Express                         La Mesa CA  1-619-697-8873
 Serenity in Sonoma                   Santa Rosa CA  1-707-576-0397
 CA Self-Help Library                    Anaheim CA  1-714-952-2110
 Central Computer Banks                  Tujunga CA  1-818-352-2993
 Mysteria                                Tujunga CA  1-818-353-8891
 ST-Keep Support                   Citrus Height CA  1-916-729-2968
 The Crypts of Chaos                   Roseville CA  1-916-781-2092
 Denver Goodwill                     Westminster CO  1-303-650-7732
 Cuerna Verde BBS/2                       Pueblo CO  1-719-545-8572
 The Handicap News                       Shelton CT  1-203-926-6168
 The Dosadi Experiment              Wethersfield CT  1-203-257-9906
 EmeroGronican II                   Wethersfield CT  1-203-721-0706
 Black Bag BBS                            Newark DE  1-302-994-3772
 The 'us' Project                     Wilmington DE  1-302-529-1650
 SpaceCon BBS                            Audubon FL  1-407-459-0969
 The Above Board                        Sarasota FL  1-813-377-1470
 GammaTown BBS                           Sunrise FL  1-305-572-7060
 Health Support                     Jacksonville FL  1-904-727-7794
 Lifeline                           Jacksonville FL  1-904-276-4724
 MedInfo                            Jacksonville FL  1-904-246-1481
 The Fire Escape                   St. Augustine FL  1-904-823-0947
 Southern Crescent                   Forest Park GA  1-404-363-0194
 The Public's Domain                    Martinez GA  1-706-860-5070
 Karma *VS Dogma                      Des Moines IA  1-515-288-7793
 Silver Slipper BBS                        Pekin IL  1-309-346-6829
 BearWiz                                  Peoria IL  1-309-697-1011
 I Can! BBS                              Chicago IL  1-312-736-7434
 The Llama Kingdom                      Rockford IL  1-815-654-7956
 Special Needs BBS                       Whiting IN  1-219-659-0112
 South of the River                  Kansas City KS  1-913-642-7907
 N.O.P.C. Club BBS                   New Orleans LA  1-504-486-7249
 Middlesex News BBS                   Framingham MA  1-508-872-8461
 StarBase                                 Boston MA  1-617-739-9246
 VIBUG                                    Boston MA  1-617-767-2909
 Real Times                               Boston MA  1-617-783-8820
 The Twilight Clone                    Rockville MD  1-301-946-3070
 Light Source                      Silver Spring MD  1-301-439-7437
 NatureNet BBS                     Silver Spring MD  1-301-585-5680
 The Idea Link                     Silver Spring MD  1-301-949-5764
 Message Express                      Marysville MI  1-313-364-4162
 Boat Town USA                       Mt. Clemens MI  1-313-468-0912
 New Life BBS                   Sterling Heights MI  1-313-795-5829
 The Lyme Light                           Warren MI  1-313-774-5038
 Twin Star                             Waterford MI  1-313-623-6314
 Ancient Heart                           Saginaw MI  1-517-752-3203
 DRAGnet                                 Andover MN  1-612-753-1943
 Doc in the Box BBS               Jefferson City MO  1-314-893-6099
 On-Line Radio Wave                  Kansas City MO  1-816-561-3650
 Electronic Dreams BBS                   Jackson MS  1-601-372-6998
 The Orphanage                         Charlotte NC  1-704-873-2058
 Deredain's Realm                      Fair Lawn NJ  1-201-796-2752
 SelfHelp BBS                          Elizabeth NJ  1-908-289-3981
 The Electronic Trib                 Albuquerque NM  1-505-823-7700
 CIC/S.I.G.C.A.P.H                   Churchville NY  1-716-293-2692
 Med TechNet                             Buffalo NY  1-716-688-1552
 IN*TOUCH                              Rochester NY  1-716-594-1222
 Acorn I                                Marlboro NY  1-914-236-3265
 Purple Rose of Cairo               Poughkeepsie NY  1-914-473-1697
 Nerd's Nook II                      Rocky River OH  1-216-356-1772
 Olman BBS                           Beavercreek OH  1-513-427-9473
 Michele's BBS                        Miamisburg OH  1-513-435-1163
 The Book Club BBS                      Columbus OH  1-614-268-8050
 Bitter Butter Better                     Tigard OR  1-503-620-0307
 Oregon Desert                            Madras OR  1-503-475-3056
 Modern BBS / Compu Mail                 Hatboro PA  1-215-638-2334
 Chronicles of Narnia               Philadelphia PA  1-215-464-9068
 The Pythonian                      Philadelphia PA  1-215-676-3618
 ECBear                             Philadelphia PA  1-215-755-1917
 US Telematics                           Yardley PA  1-215-493-5242
 Sounding Board                       Pittsburgh PA  1-412-621-4604
 The Programmers Pit                        York PA  1-717-845-2725
 Matric Limited                         Franklin PA  1-814-437-5647
 The Equalizer BBS                       Dalzell SC  1-803-469-2018
 The Soul Connection                 San Antonio TX  1-210-674-1242
 FIAWOL/MS-Connection                     Dallas TX  1-214-790-6472
 National Amputee Connection              Dallas TX  1-214-238-0928
 Enterprise BBS                           Austin TX  1-512-453-5079
 A Little Corner in Time                 Houston TX  1-713-451-6066
 MacEndeavour                            Houston TX  1-713-640-1298
 The Recovery Corner                    Burleson TX  1-817-447-1619
 Sky's The Limit Adanet                  El Paso TX  1-915-594-7806
 HandiNet BBS                     Virginia Beach VA  1-804-496-3320
 Le Maison De Metal                        Lacey WA  1-206-493-0798
 Darkstar System                        Longview WA  1-206-578-1157
 Rob's Wreck Room                       Longview WA  1-206-578-1948
 WCIS#2                                  Seattle WA  1-206-767-7681
 Project Enable                      Cross Lanes WV  1-304-759-0727

                         === CANADA ===

 Generations                             Calgary AB  1-403-251-5540
 The Messhall                            Calgary AB  1-403-286-7545
 Alberta On-Line RBBS                   Edmonton AB  1-403-466-7613
 Owl & PussyCat                       Abbotsford BC  1-604-436-3271
 Metamorphosis                      N. Vancouver BC  1-604-986-8791
 Second Chance                           Nanaimo BC  1-604-753-9137
 Square Hole                             Nanaimo BC  1-604-756-3177
 T.R.A.C.E.                             Richmond BC  1-604-272-5888
 The BandMaster                        Vancouver BC  1-604-266-7754
 Acropolis HST                            Grimsb ON  1-416-945-6131
 The House of Comments                 Pickering ON  1-416-831-6102
 The Artsy-Fartsy BBS                    Toronto ON  1-416-465-7436
 Leftover Hippies                        Toronto ON  1-416-466-8931
 Can-Do Systems group                    Toronto ON  1-416-604-1221
 AbleLINK                                Toronto ON  1-416-650-5411
 Canada Remote Systems                   Toronto ON  1-416-798-4713
 Crawlin' Kingsnake                    Kitchener ON  1-519-744-6266
 Chans Land BBS!                       Stratford ON  1-519-273-5607
 Home Base                            St. Thomas ON  1-519-633-7253
 Disability Access BBS                    Ottawa ON  1-613-837-5473
 Echo Valley                              Ottawa ON  1-613-749-4550
 Ottawa-Orleans P.S. UG                   Ottawa ON  1-613-747-7665
 Parity Error EMCS                        Ottawa ON  1-613-737-0966
 The Procrastinators                      Ottawa ON  1-613-669-0617
 Wholebit Computer News                   Ottawa ON  1-613-521-3690
 Viking's Cove                           Trenton ON  1-613-394-5919

                         === AUSTRALIA ===

 Heaven's Door                         St. Ives NSW  61-2-440-8364
 The Runway                            Stanmore NSW  61-2-569-5130
 Big Tedd's                             Fitzroy VIC  61-3-417-2440
 Imail & FileMgr Support             Coldstream VIC  61-3-739-0028
 The Homeless BBS                     Frankston VIC  61-3-783-1275
 Atropos                         Wantirna South VIC  61-3-887-1485
 Perth Omen                                Perth WA  61-9-244-2111

                        === BRITAIN ===

 Shaking Hands                            Fleet  UK  44-252-626233
 MEgahertz (Midn-6am)                     London UK  44-81-595-1921

                       === NETHERLANDS  ===

 Dutch Health BBS                      Apeldoorn NL  31-55-337951

The CFS echo is on Fidonet's North American backbone.  To pickup the
CFS echo feed directly, sysops can dial in North America to
1-304-759-0727, in Europe to 44-81-595-1921 (Midn-6am GMT), and in
Australia to 61-3-417-2440.  Please post corrections and updates of
the above information to the CFS echo to the attention of Sandy Shaw,
or send e-mail to Mr. Shaw at Fidonet 1:163/221, or Internet
aa328@freenet.carleton.ca .



Section 7:  HOW TO GET ACCESS TO THE NETWORKS

This section describes how to get on Internet, Usenet, the commercial
networks, and how to find a BBS near to you that will carry the CFS
conference if none of those listed in Section 6 above are near you.
To see descriptions of what CFS resources are available on these
various networks, see Section 1 and subsection 5-D above.

  A. INTERNET AND USENET

"The Internet" is the name for the rapid communications network which
uses electronic mail and other services to link most mainframe
computers around the world.  On the Internet you can get quick access
to the CFS-NEWS electronic newsletter, and you can participate in the
CFS-L worldwide discussion group and other groups, all available
through Internet e-mail.

Access to Internet can be gained through:

   - various "Free-Nets", listed below;
   - free or low-cost public unix nodes, listed below;
   - most of the commercial services described in subsection 5-D
     above, (and whose costs are described in subsection B below);

                  FREE / LOW-COST INTERNET ACCESS.

FREENET.  The various Free-Nets allow Internet access at little or no
cost.  Current Free-Nets (FNs) now operating are as follows:

    Name              Location      Dial-in      login info
 -------------     ------------  --------------  -----------
 Denver FN            Denver CO  1-303-270-4865  login: guest
 CapAccess        Washington DC  1-202-785-1523  login: visitor
                                                 password: guest
 Tallahassee FN  Tallahassee FL  1-904-488-5056  login: visitor
 Heartland FN         Peoria IL  1-309-674-1100  login: bbguest
 COIN               Columbia MO  1-314-884-7000  login: guest
 Big Sky Telegraph    Dillon MT  1-406-683-7680  login: bbs
 Buffalo FN          Buffalo NY  1-716-645-6128  login: freeport
 Cleveland FN      Cleveland OH  1-216-368-3888  login: Select #2
                                                        at first menu
 Lorain County FN     Elyria OH  1-216-366-9721  login: guest
 Youngstown FN    Youngstown OH  1-216-742-3072  login: visitor
 TriState Online  Cincinnati OH  1-513-579-1990  login sequence:
                                        cbos, visitor, 9999, <return>
 Medina County FN     Medina OH  1-216-723-6732

 Victoria FN        Victoria BC  1-604-595-2300  login: guest
 National Capital FN  Ottawa ON  1-613-780-3733

 Citynet          Wellington NZ  write to Computer Services,
                                 Wellington City Council
                                 P.O. Box 2199, Wellington, NZ

For more information on Free-nets contact NPTN (National Public
Telecomputing Network), P.O. Box 1987, Cleveland, Ohio 44106 USA,
tel. 1-216-247-5800, FAX: 216-247-3328, Internet info@nptn.org,
anonymous ftp to nptn.org (192.190.49.8) /pub/info.nptn/ .

 ====================================================================
 PUBLIC UNIX NODES (July 5, 1993).  The following information is
copyrighted.  Below is a list of Public Unix nodes, most of which
offer free or low-cost use of Internet e-mail, and many offer access
to newsgroups.  The following data is used at your own risk and cost.

  Name           Location          Dial-in      login info
 -------    ------------------  --------------  -----------
 coyote     Tucson          AZ  1-602-293-3726
 szebra     Sunnyvale       CA  1-408-739-1520  login: bbs
 gorn       Santa Cruz      CA  1-408-458-2289  login: gorn
 uuwest     Sunnyvale       CA  1-408-245-7726  login: new
 woodowl    Livermore       CA  1-510-294-8591
 netlink    San Diego       CA  1-619-453-1115  login: bbs
 cyber      Encinitas       CA  1-619-634-1376  login: guest
 nyx        Denver          CO  1-303-871-3324  login: new
 admiral    Greenwich       CT  1-203-661-1279
 vicstoy    Orlando         FL  1-407-299-3661  login: bbs
                                                passwd: (none)
 amaranth   Pensacola       FL  1-904-456-2003
 oaknet      Oak Lawn       IL  1-708-425-8739
 lunatix    Lexington       KY  1-606-233-2051
 genesis    North Reading   MA  1-508-664-0149
 anubis     Jackson         MI  1-517-789-5175
 pnet51     Minneapolis     MN  1-612-473-2295  login: pnet  id: new
 tutor      Lebanon         NH  1-603-448-5722
 kilowatt   Deer Park       NY  1-516-586-4743
 tnl        Troy            NY  1-518-237-2163  login: new
 exuco1     Buffalo         NY  1-716-634-6552
 bluemoon   Reynoldsburg    OH  1-614-868-9980
 techbook   Beaverton       OR  1-503-220-0636
 m2xenix    Portland        OR  1-503-297-3211
 medsys     Kingsport       TN  1-615-288-3957  login: bbs  pass: bbs
 sdf        Dallas          TX  1-214-436-3281
 sugar      Houston         TX  1-713-684-5900
 nuchat     Houston         TX  1-713-668-7176
 bitsko     Salt Lake City  UT  1-801-566-6283
 wyvern     Norfolk         VA  1-804-627-1828
 tnc        Fairfax Station VA  1-703-803-0391
 solaria    Milwaukee       WI  1-414-321-9287  login: help
 madnix     Madison         WI  1-608-273-2657  login: bbs

 ichlibix   Blainville      QU  1-514-435-8896

 infocom    Berkshire       UK  44-734-34-00-55  login: new
 scuzzy     Berlin          DE  49-30-694-61-82  login: guest
 isys-hh    Hamburg         DE  49-40-494867
 odbffm     Frankfurt/Main  DE  49-69-308265
 nervous    Rimini (Fo)     IT  39-541-27135
 ixgch      Kaiseraugst     CH  41-61-8115492
 cavebbs    Wellington      NZ  64-4-564-2314

The information above is a selection of the complete NIXPUB listing
and is shown here by special arrangement with Bux Technical Services.
(C) Copyright 1993 by Bux Technical Services.  This publication is
released for unlimited redistribution over any electronic media, and
is released for reproduction in the publications of any not-for-
profit patient group publications providing it remains in its
original form.  Otherwise publishing, removing this copyright notice,
or in any way revising this document's contents is forbidden without
written consent from the owner (contact Bux Technical Services, PO
Box 110, Doylestown, PA 18901 USA; internet phil@bts.com; tel.
1-215-348-9721, Fax 1-215-348-2567).
 ====================================================================

If you want the complete NIXPUB file, which shows many more nodes
than listed above, note that it comes in 2 versions: long, and short
(1-line descriptions).  They are available from the UNIX DEPOT BBS (7
bits, even parity) at 1-215-348-9727; login as nuucp, enter the BBS
service, filenames /usr/spool/uucppublic/nixpub and *.short .  On the
Internet, send mail with the message text containing "get PUB
nixpub.long" or "get PUB nixpub.short" to mail-server@bts.com.

Another source, the PDIAL file, contains a list of public unix nodes
which offer a wide variety of services for fees that are moderate or
expensive.  It is available at the Project ENABLE BBS at telephone
1-304-759-0727 in file area 22 as filename PDIAL.TXT.  On Internet,
send email with the subject "Send PDIAL" to the address
info-deli-server@netcom.com .

  B. COMMERCIAL NETWORKS

The CFS resources that are available on the following services were
described in subsection 5-D above.  What appears below is information
on costs and how to sign up.

GENIE.  To join, call 1-800-638-9636 in the USA or Canada.  GENIE
service in the USA is $8.95/month.  The hourly rate is $3/off-peak,
$9.50/peak (i.e., Mon-Fri 8am-6pm).  In Canada, GEnie is $10.95 per
month.  The hourly rate is $4/peak, $12/off-peak.  Four hours of free
credit are allowed to all customers each month.  Internet e-mail is
billed as part of the overall service.

PRODIGY is available in the USA only.  To join call 1-800-776-3449.
There are 3 pricing plans and the cost for each needs local tax
added.  The "value plan" is $14.95 per month and includes all use of
"core" services (which do *not* include the CFS/Medical Support area)
for no extra hourly usage fee; "Plus" services are charged by the
standard rates (see below).  The "alternate plan 1" is $7.95/month
which includes 2 free hours of core and/or Plus services; extra hours
beyond the 2 free hours are billed.  The "alternate plan 2" is
$19.95/month which includes 8 free hours of core and/or Plus
services; extra hours beyond the 8 free hours are billed.
Participants in the Medical Support board where the CFS topic is get
a price special break: 5 hours free usage per month plus $2.40 per
each hour thereafter while in the Medical Support/CFS area.  Outside
of the Medical Support area, the standard hourly rates, when
applicable, are $4.80/hr for 0 to 3 hours, $4.20/hr for over 3 to 6
hours, and $3.60/hr for over 6 hours billed.  There are additional
fees for sending e-mail.  Prodigy plans to add Internet e-mail in the
autumn of 1993.

COMPUSERVE.  To join in North America, call 1-800-848-8199 (see other
numbers below).  They have 2 pricing plans.  The Standard plan is
$8.95/month for basic services, and the hourly rates are: 300 baud,
$6/hr; 1200 or 2400 baud, $8/hr; 9600 baud, $16/hr.  (INTERNET: There
is no hourly rate while using mail under this plan; instead, Internet
messages sent or received are billed at $0.15 per 1st 7500
characters, $.05 for each 2500 characters thereafter, and there is a
$9/month mail allowance.)  The Alternative plan is $2.50/month; the
hourly rates are: 300 baud, $6.30/hr; 1200 or 2400 baud, $12.80/hr;
9600 baud, $22.80/hr.  (INTERNET: use of the mail area is simply
billed at this plan's regular hourly rate.)  Prices are higher
outside of North America.  For overseas information call
1-614-457-0802 (Ohio, USA) or call toll-free in Australia 008025240,
New Zealand 0800446113, U.K. 0800289378, or Germany 01303732.

MCI-MAIL.  For sign-up information in the USA call 1-800-444-6245.
The annual fee is $35.00.  (INTERNET: All in-coming messages are
free.  There is a charge for out-going messages depending on the size
of the message: the first 500 characters are 50 cents; the next 500
are an additional 10 cents; each thousand characters from 1,001 to
10,000 are an additonal 10 cents; each thousand characters above
10,001 are 5 cents each.)  For service outside of North America call
1-202-833-8484 in Washington, DC or in the UK call 44-71-9281232 or
in Germany call 49-89-4313071.

AMERICA ON-LINE sign-up information can be found at telephone
1-800-827-6364.  The cost is $9.95/month and the connect-time rate is
$3.50/hour after the 5 free hours given each month.

  C. FIDONET

If you don't have a nearby BBS which carries the CFS conference (as
listed in Section 6 above) but would like to have local access, ask
Fidonet BBSs near to you to please carry the conference (usually
referred to as an "echo").  If you don't know of Fidonet BBS nearby
to you, then consider the following sources:

1. If you are the contact person for a support group, then contact
the CFS/ME Computer Networking Project for assistance (see
description & address at the end of section 1 above).

2. Get a copy of the Handicap BBS file and find the Fidonet BBS
nearest to you.  Since the BBSs listed in this file already deal with
health-related issues, they may be particularly amenable to a request
to carry the CFS echo.  In the file, the Fidonet BBSs will be those
which are accompanied by designations like (123/456).  The file can
be found on the Handicap News BBS at 1-203-337-1607, filename
HCAPBBS.LST or *.ZIP.  Or do anonymous ftp from
handicap.shel.isc-br.com (129.189.4.184) and get bbslists/hcapbbs.lst
or *.zip.  On the Internet, send the message GET CFS-BBS HANDICAP as
e-mail to the address LISTSERV%ALBNYDH2.BITNET@ALBANY.EDU .

3. You may dial up one of the Fidonet coordinators listed below and
leave a message (to "SYSOP") asking for a list of the Fidonet BBSs
nearest you (mention your city and state/province).

                            ZONE 1  NORTH AMERICA

           Calif-Nevada, Tustin CA  1-714-838-6539
Central United States, Columbus OH  1-614-841-0355
         Eastern Canada, Ottawa ON  1-613-723-5711
          Mid-Atlantic, Fairfax VA  1-703-323-7654
               Mid-West, Joplin MO  1-417-673-2283
        AZ-CO-NM-UT-WY, Phoenix AZ  1-602-894-8762
           New England, Danbury CT  1-203-791-8532
          North-West, Vancouver BC  1-604-266-1977
SouthEast/Caribbean, Titusville FL  1-407-383-1372
           TX-AR-OK-LA, Houston TX  1-713-496-6319

                            ZONE 2  EUROPE & MIDDLE EAST

                            Sweden  46-36-121323
                      Oslo, Norway  47-2-221064
                    Espoo, Finland  358-0-881562
                           Denmark  45-32-961764
                     Hamm, Germany  49-2381-460077
          Hastings, United Kingdom  44-424-853361
                           Ireland  353-402-35308
           Pfaffenthal, Luxembourg  352-42-0201
                       Netherlands  31-75-217873
                  Schoten, Belgium  32-3-6851123
                Aarau, Switzerland  41-64-230319
                   Vienna, Austria  43-1-8154873
                            France  33-75676164
                     Genova, Italy  39-10-3770080
                  Barcelona, Spain  34-3-2193452
                   Varna, Bulgaria  359-52-259108
                  Lisboa, Portugal  351-1-8520478
                           Hungary  36-56-422-189
                   Koper, Slovenia  38-66-34986
                           Iceland  354-2-14626
                 Kfar Saba, Israel  972-52-914-618
              Thessaloniki, Greece  30-31-237763
  Czech Republic & Slovak Republic  42-184-3893
                           Turkiye  90-1-2572790
                  Tbilisi, Georgia  7-8832-293581
                    Minsk, Belarus  7-0172-706000
      Kharkov, Ukraine and Moldova  7-0572-305216
                         Lithuania  370-7-798430
                      Riga, Latvia  371-2-223986
                  Warszawa, Poland  48-22-410374
                   Tallinn Estonia  372-2-433023
                    Moscow, Russia  7-095-329-2192

                           ZONE 3  OCEANIA

         Melbourne, Vic, Australia  61-3-792-3507
        Inglewood, South Australia  61-8-380-5505
          Sandgate, Qld, Australia  61-7-269-6355
          Perth, Western Australia  61-9-257-1309
         Christchurch, New Zealand  64-3-383-1155

                            ZONE 4  AMERICA LATINA

                            Brazil  55-71-244-8764
                           Uruguay  598-2-486616
                             Chile  56-2-279-6767
                         Argentina  54-1-544-6241
               Panama City, Panama  507-23-9669
              Monterrey NL, Mexico  52-83-56-4119

                            ZONE 5  AFRICA

                Gaborone, Botswana  267-373461
        Johannesburg, South Africa  27-171-84102
                  Harare, Zimbabwe  263-4-738692
                    Nairobi, Kenya  254-2-567043
             Addis Ababa, Ethiopia  251-1-514412
                    Lusaka, Zambia  260-1-252892
                    Dakar, Senegal  221-21-7627
                    Tunis, Tunisia  216-1-70-1827

                            ZONE 6  ASIA

                         Singapore  65-2410418
                Kowloon, Hong Kong  852-789-1267
                    Tainan, Taiwan  886-6-275-3162
                 Sagamihara, Japan  81-427-77-0847
          Quezon City, Philippines  63-2-712-0329
                  Anjung-Ri, Korea  82-333-691-1602


=============== From: CFS-L@MAELSTROM.STJOHNS.EDU =================
